“Welcome. You are now a part of an elite club.” As she spoke these words I gripped the phone in silence, unable to speak, choking back the tears that threatened to erupt. Her voice sounded confident and caring.
She continued, “Your life will be so much more full as a result, not just because of all the therapists, doctors, and specialists coming in and out, but in a different way than you ever thought. It will be full in a very good way, that few experience.” As I listened I heard something else in her voice that I couldn’t quite put my finger on.
She had been at this nineteen years now, twice over. Once with her nineteen year old daughter with cerebral palsy, and once with her young son diagnosed with autism.
Content. That is what I heard. Her voice sounded confident, caring, and…content.
I let the tears fall freely. She uttered words I had not expected to hear. Words that washed over me in a flood of relief, encouragement, and sense of community.
I had waited six months after learning of Champion’s diagnosis before I reached out to another mom with a child with special needs. It was an unforgettable welcome, words that are etched not only in my mind, but in my heart.
And now that I am three years into this journey, I can say that yes, indeed this is an elite club. This club of parents who love, cherish, and go to extremes to meet the special needs of their extraordinary children.
This is a club that does not hesitate to reach out to each other, to provide words of comfort, to share in the very high highs and the very low lows. Prayers uttered for each other come from a heart that knows the same pain.
This club is a remarkable one. An emotional one. A comforting one. A strong one. A tough one. A beautiful one. A welcoming one. A club that is full of miracles.
This elite club of mothers and fathers living a different kind of life, a difficult yet full one, has once again come together to reach out to each other, to provide words of comfort, and to share the beauty of this life with each other and the world.
The following video made by Elizabeth from: a moon, worn as if it had been a shell, is a breathtaking depiction of this elite club, this full life.
Please take a moment to share this beautiful video with others.